Thursday, March 17, 2011

National Multiple Sclerosis Awareness Week / Education Month

Since its Nation MS Awareness Week /MS Education Month I thought appropriate to say something about it.

I'm sure you are all aware that I was diagnosed with MS back in July (2010). That was my first diagnosed flair up. I have been having flairs since my early/mid 20's and like alot of people didn't realise it. Unfortunately since that last flair up I haven't had alot of improvement and continue to have declining and ever changing issues, some of which I didn't even realize were considered MS symptoms.

Since I didn't know these things were symptoms of MS I'm sure there are others out there that are as clueless as me so I thought I would share some of the things that your neurologist doesn't always tell you. Or what I call my list of TMI.

The bouts of nausea that show up without warning

The inability to go more than an hour without having to pee ( let me tell ya this will quickly determine what you wear for the day, if your hands are not working well you dang sure don't want to wear something with lots of buttons!)

The constipation/diarrhea (you either cant stop going or you cant go at all. Either way you have to plan your day around where the bathroom is)

The itching (its caused by nerves dying or going through the demylination process. Either way it will make you nuts!)

The changes in your menstrual cycle

And all of that on top off all the things they DO tell you to expect.


I feel like crap most days and I'm so over it. People ask me how I'm doing or how I'm feeling and 9 out of 10 times I give my usual answer " I'm OK" or "I'm good" when in reality I'm wishing I could just go home and crawl into bed. If I told everyone how I was really feeling every time they asked they would get tired of listening to me whine and complain.


I'm tired of living my life around my medication schedule, my need to rest after a simple trip to walmart, tired of looking like a black and blue crash dummy from losing my balance and running into stuff and having bruises from my injections every day.

I'm so over MS!

If you know someone that has MS and they tell you they are OK, take a minute and really look at them. Just because they say they are OK chances are they aren't and could really use a kind word, or a hug.

If you have MS, I'm sorry. {{Hugs}} to you. This is a horrible disease that has taken so much from the people that have it.


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